Patient Organisations

Navigating the challenging world of rheumatic diseases can be daunting and confusing.
We aim to update this patient page with valuable resources for education, support, and financial/legal assistance for rheumatology patients and their caregivers to find the information they need about rheumatic diseases and conditions.
Please let us know if you have suggestions to add to these resources, or links you have found useful!

Organisations

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  • Ghana
  • Ghana

Dr Dzifa Dey

MBChB, FWACP, MSC, SCE-RCP (Rheum), FACR Senior lecturer: University of Ghana Medical school. Head of Rheumatology unit: Korle Bu Teaching Hospital

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  • Patient Organizations - Nigeria

Lupus Awareness Nigeria (Mablevi Lupus Foundation)

Email: mablevilupusfoundation@yahoo.com

Call: +234 818 501 8688

Social media: Lupus Awareness Foundation

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  • Patient Organizations - Nigeria

Lupus Aid Foundation Nigeria

Social media IG: lupus_aid_foundation

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  • Patient Organizations - Nigeria

The LabaLaba Foundation

Call: +234 818 199 3322

 Email: info@lupusnigeria.org

Social media IG: thelabalabafoundation

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  • Patient Organizations - Kenya

Paediatric AFLAR

Email: info@paflar.org

Tel: +254 722 841 719

Social media: fb; Paflar Africa Afrique

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  • Patient Organizations - Kenya

Lupus Foundation of Africa Nairobi, Kenya

Email: info@lupusfa.org

Phone: +254 729 877399

Social media handle IG: LUPUS Foundation of Africa

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  • Patient Organizations - Mauritius

Association of Rheumatology Concerns

Call: +23052554094

Email: arcassociation.mu@gmail.com

Social media FB: Association of Rheumatology concerns

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  • Patient Organizations - Mauritius

Lupus Alert

Email: lupusalert@hotmail.com

Call: +(230) 4648276 +(230) 4659899 +(230) 59168574

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  • Patient Organizations - Tanzania

 Lupus Tanzania

Email: admin@lupustz.org

Social media IG: lupustz

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  • Patient Organizations - uganda

Lupus Initiative Uganda

Call: +256 785 427950

Email: info@lupus-initiativeuganda.org

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  • Patient Organizations - Egypt

Egyptian Society for Lupus

Social media Fb: facebook.com/Egyptian-Society-For-Lupus-256097624595448/

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  • Patient Organizations - South Africa

Andrea’s Gift Foundation Lupus Support

Email: hellocpt@andreasgift.co.za

Social media Fb: https://web.facebook.com/andreasgift/?_rdc=1&_rdr

Call: +27 (0)76 690 7763

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  • Patient Organizations - South Africa

Arthritis Foundation of South Africa

Tel: +27 21 425 2344, +27 86 130 3030

Email: info@arthritis.org.za

Social media: ig; Arthritissouthafrica

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  • Patient Organizations - South Africa

Arthritis Kids South Africa

Tel: +27 64 901 2084

IG: arthritiskidssa

Email: Admin@arthritiskids.co.za

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  • Patient Organizations - South Africa

Axial Spondyloarthritis Association of South Africa, ASASA

Email: info@axspasa.org.za

Social media: IG: axspasouthafrica

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  • Patient Organizations - South Africa

Lupus South Africa

Email: info@lupussa.co.za

Social media IG: lupus_sa_npo

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  • Patient Organizations - South Africa

South Africa Rheumatism and Arthritis Association, SARAA

Tel: +27 63 680 2551, +27 11 933 9377

Email: admin@saraa.co.za, exec@saraa.co.za

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